Wring every bit out of life you can with whatever
life you've been given!!
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Someone who hopes to help newly diagnosed Alpha1's have a better understanding of how to help themselves...and others.
cabin
Favorite Poem:
I Do Not Choose To Be The Common Man
Ultimate Dream
Go back to being self employed and take vacations.
Motto:
Nothings Impossible
Current Doctors:
- Dr Pasic - UW Madison (Ear, Nose & Throat)
- Dr D. Kyle Hogarth - U of Chicago (pulmonologist)
Facts about Alpha1
- Severely effected alphas usually go on augmentation therapy($$$$$)
- There is no cure
- It most commonly affects the liver or the lungs
- It is hereditary
- It takes an average of 7 years and 5 doctors before it is accurately diagnosed
- It is commonly misdiagnosed as allergies or asthma
- It is most easily diagnosed in children as a result of liver issues
- 1 in 2700 is a ZZ or a Null/Null
- Approximately 6,000 out of 100,000 people in the USA have been diagnosed
- 1 in 33 people are carriers
About Me
- kschwabs
- Northern Wisconsin, United States
- Diagnosed 9 years ago with alpha1 and thought "Oh, it's just like diabetes...you just manage it." Six years ago shortly after turning forty I got what I call "That hit by a freight train letter!" It said I had lost a projected 12% of my lung function in two and three quarters of a year. I was now down to a projected lung function of 47%. It also said the augmentation therapy I wasn't supposed to have to start I would need to start. I spent a little over five months absorbing the shock of it and decided I didn't want to be a victim and it was up to me if I wanted to change the outcome of my future as a ZZ alpha1. Thus became the start of my lifestyle changing journey.
Current Maintenance Medications
- spiriva
- Zamaira
- Albueterol (Ventolin HFA)
- Advair 50/500
Lung Stats
- December 2014 FEV1 47% Oxy 96%
- October 2013 FEV1 32% Oxy 97%
- September 2013 FEV1 24% Oxy 93%
- October 2012 FEV1 39%
- September 2012 FEV1 25%
- September 2011 FEV1 47% Oxy ?
- April 2009- FEV1 51% Oxy 97%
- July 2008- FEV1 47% Oxy 97%
- June 2008- FEV1 41 %, Oxy 98 %
- January 2007- FEV1 44 %, Oxy 97 %
- November 2005- FEV1 47 %, Oxy 96 %
- March 2003- FEV1 59 %, Oxy ?
Events I Will Be Attending:
National Alpha1 conference June 2017
If You Think You'd Like One...Click below!
alpha1 links
helpful cancer links
links worth looking at:
adventure links
Books Waiting To Be Read On My Shelf:
- Driven To Distaction
- Unmarketing
- The Third Screen
- The Haymakers
- The Knack
- Linchpin
- The Dip
- The Power Of Eye Contact
- Grouped
- The 21the Irrefutable Laws Of Leadership
- Boundaries
- Poke The Box
- The Education Of Millionaires
- Be The Miracle
- Choosing To Be Great
- 50 50
- The 22 Immutable Laws Of Marketing
- Drive
- Six Pixels Of Seperation
- The Great Depression Ahead
- Where have all the leaders gone
- Reposition Yourself: Living Life Without Limits
- Covering Home: My Life With Nolan Ryan
- Stolen Season
Got something to say - sign my Guest Book
2009 events
- Dairyland Dare- August 15th,2009 Dodgeville,WI
2007 events
- Join The Journey (Rochester,MN) September 16, 2007 / 10 mile
- Hike For Healthy Lungs (Montrose Harbor/Chicago) September 23, 2007 / 3 mile
- RCU Charity Classic(Eau Claire,WI) June 30, 2007 / 2k walk 30:53
- Dairyland Dare(Dodgeville,WI) August 11, 2007 / 60 mile trek (scratched due to recovery from sugery)
- Scenic Shore 150(Mequon,WI) July21 & 22, 2007 / 150 mile trek (scratched due to cancer surgery)
- Rock 50/50(Janesville,WI) May19, 2007 / 38 mile trek 5.5 hrs
- Quadrupedal(Dodgeville, WI) May6, 2007 / 35 or 50 mile trek (scratched due to lung infection)
- Only Fools Run At Midnight(Minocqua,WI) April1,2007 / 5k walk 56:17
what I eat and exercise log
Hey You Weren't Supposed To Find This!!! Weight
- 02/09/2009 177.6 lbs
Events I attended/participated in 2008:
- Dairyland Dare August 16,2008 Dodgeville,WI
- Alpha1 Education day April 26, 2008 Oak Brook, IL
- Stepping Up To Wellness Walk April 27, 2008 Northbrook, IL
- Madison Paddle & Portage July 19, 2008 Madison, WI
13 comments:
I had been suffering from Unstable Angina of the heart for years..We have tried all we could to get the best of drugs and improve my condition on medics but my condition have not improved even after spending lots of money trying to give her the best..My illness has given me so much concern.. I was introduced to a psychic site by a spell caster where I read a testimony of a woman cured of subarachnoid hemorrhage permanently..I was baffled an interested in how she was cured and it was revealed that a spell caster helped her did a spell that cured her.. I contacted the spell caster and explained my case to him..he helped me did same spell and told me to take her for a test..we went for almost 5 checkups after the test and the medics all confirmed there is no traces of the virus in her system again..people that has been suffering from this illness can contact the spell caster on ishvaratemple@yahoo.com
How i got my boyfriend back.Am Stacey Bruno by name I never believed in love spells or magic until I met this spell caster once when i went to see my friend in Indian this year on a business summit. I meant a man who's name is Dr ATILA he is really powerful and could help cast spells to bring back one's gone, lost, misbehaving lover and magic money spell or spell for a good job or luck spell .I'm now happy & a living testimony cos the man i had wanted to marry left me 5 weeks before our wedding and my life was upside down cos our relationship has been on for 3years. I really loved him, but his mother was against us and he had no good paying job. So when i met this spell caster, i told him what happened and explained the situation of things to him. At first i was undecided,skeptical and doubtful, but i just gave it a try. And in 7 days when i returned to Canada, my boyfriend (now husband) called me by himself and came to me apologizing that everything had been settled with his mom and family and he got a new job interview so we should get married. I didn't believe it cos the spell caster only asked for my name and my boyfriends name and all i wanted him to do. Well we are happily married now and we are expecting our little kid, and my husband also got the new job and our lives became much better. His email is atilahealinghome@yahoo.com
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