The Top10 Things You Should Do If You Test Positive For Alpha1

  • Have A List Of Questions When You See a Doctor About Your Alpha1(If you try to remember the questions you want to ask you may forget half of them)
  • Learn To Breathe Effectively
  • Limit Or Eliminate Your Alcohol Consumption
  • Don't Be Afraid To Be Proactive About Your Alpha1
  • Get Plenty Of Rest(You will likely have a higher oxygenation level)
  • Avoid Sick People(You have a lower immune system than most people)
  • Drink Plenty Of Water
  • Eat Healthy/Avoid Processed Food(Carbonated beverages)
  • Start A Careful Exercise Program/Pulmonary Rehabilitation Program(Your muscles will become more efficient so they won't use as much oxygen and if you have surgery you will likely recover quicker as well)
  • Stop Smoking

Thursday, January 8, 2015

Becoming Your Own Health Benefits Specialist

I could not have been able to become my own if it had not been for Lian Johnson at the former Accredo now Expresscripts. Thankfully under Accredo leadership the health insurance benefits specialist was encourage to keep the patient informed every step of the way. I've come to realise that those "alpha1 advocates" employed by others in the medical field don't measure up. Again props to Lian!! I qualified for hardship financial assistance but, it wasn't worth much if no one cared if the infusion claims were processed properly and every month. I spent a lot of time calling the product provider and my health insurance company I utilize to get those product shipments processed. So although I am left holding some medical bills...it will be nothing like the last 5 out of 7. I became that annoying little chihuahua barking till all they cared about was quieting me down.
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