Is it lucky? It's been 7 years since I flew. I haven't even flown on one of my BIL's planes. It was kinda cool. I used to go visit my Mom at her winter home in Sun City during February years ago. Now,
I'm heading to Alexandria, VA to attend the National Alpha1 convention! Compliments of CSL Behring. I called my sister Mary last night about my flight numbers. She kept telling me to HAVE FUN!! My nurse Sue said the same thing yesterday morning. HAVE FUN!! I keep thinking "Gosh, I hope I learn something new OR maybe I can meet a new alpha with a new story to tell about them and alpha1".
I feel sooo blessed to have Sue for a nurse!! Her boss isn't real thrilled that she is still seeing me instead of me playing musical nurses. I asked her if she got paid for doing some of the things she does for me and she said no. I then asked her what made her do what she did. She said "I'm good at finding veins and I find my work rewarding." I thought what great thing to be able to say when your our age! We aren't sure if I can do the inserting the needle to start my infusion because my hands shake so much. I am going to put off taking my combivent next Thursday and see if that helps.
The Top10 Things You Should Do If You Test Positive For Alpha1
- Have A List Of Questions When You See a Doctor About Your Alpha1(If you try to remember the questions you want to ask you may forget half of them)
- Learn To Breathe Effectively
- Limit Or Eliminate Your Alcohol Consumption
- Don't Be Afraid To Be Proactive About Your Alpha1
- Get Plenty Of Rest(You will likely have a higher oxygenation level)
- Avoid Sick People(You have a lower immune system than most people)
- Drink Plenty Of Water
- Eat Healthy/Avoid Processed Food(Carbonated beverages)
- Start A Careful Exercise Program/Pulmonary Rehabilitation Program(Your muscles will become more efficient so they won't use as much oxygen and if you have surgery you will likely recover quicker as well)
- Stop Smoking