update:

I am still trying to get a handle on what is triggering certain things. At first I thought I was hypoglycemic and I may be. I was showing all the classic signs but, when I focused on that I really only had one really great day.

I also heard that taking cinnamin capsules help with metabolizing of sugar.

Then somebody threw out the idea..."Maybe it's because of too much caffeine. So, then I had a small can of decaf at the house and did a 1/2 caf/1/2decaf batch of coffee. Then I had two really good days in a row. I have also begun eating breakfast every morning for the first time in 25 yrs. I can't skip meals or I pay. I'm still not exercising till I get a handle on this but, I am sure I will resolve what cause me to have bad or so-so days. I am sleeping better since I switched rooms and my mind seems sharper to me. I am currently reading: "The Difference".

Explain Please....I'm Concerned

I got a phone call from a friend in Chicago a day or so after my last post. This is an explanation of what happened.

I had been noticing I was forgetting things more and more often. I had been feeling exhausted. The week of the last post I had walked into work several mornings and became light headed & thought I was going to pass out. I also had walked across the parking lot over to the gas station. There is a snow bank that seperates the gas station from the employee parking lot at work. I came barreling down the other side, slowed down and wondered if I was going to pass out. The day before I last posted I had veiwed a safety dvd about the dangers of texting while driving based on a true event. Seven hrs later I had no remembered it right. I had sent an email to two biz executives(one happened to be my sister) and my primary health POA's husband who happens to be a traveling evangelist. Imagine my mortification when I discovered that the link I sent was for an adult entertainment site! I had txtd the right link to someone right after the safety mtg so I was then able to send the proper link. That was the deciding factor.

The next day the boss came around and said "The flu shots are being given in the large conference room. Your time is 12:32. Write that down somewhere so you won't forget Katie!" I realized also that if I didn't resolve these issues I would be a poor biz manager. I don't want to ever wait 8 yrs to get back to broke AGAIN! I also do not want to be another "Suzie's Super wing ding sauce"(that is not the real name of the product). It was produced in the county I live in and they were not prepared for the products demand to evolve. I want to be able to think "On the Fly" as I like to say.

I spoke to my alphanet coordinator last wk and she says "Your cognitive state is improved." I also realised when I was going through boxes and discovered my scale that I had lost a good bit of weight in the last 2 months. At first I thought it was off so, I called Marshfield Clinic and asked if I could use their scale to weigh myself. I needed the info for a alpha1 research project I was participating in. I discovered it was right. I then realised when I altered my monthly budget that by not eating any snacks from the vending machines, gas stations, etc.....I had in advertantly cut 600 -860 calories from my diet. That meant that I was only consuming about 900 - 1000 calories. According to the dietician @ Mayo I needed 1500 calories to function. I had my alphanet coordinator send an email to Dr. Sandhaus about it and he attributed to some other medical condition which I am not buying having been an athlete and watching wrestlers over the yrs drop weight in less than healthy ways to qualify for certain weight divisions.

I am feeling sharper. I'm down to a 32 waist which is likely a size 10 is my guess. I increased my caloric intake by 400 - 500 calories a day. I am still tired. By the end of today my old bedroom will be transformed into a fitness room so I will no longer have any excuse why I can't exercise. I'll have my Kurt Kinetic fluid trainer set up by the end of the week so I can prepare for biking this summer. I bought it 3 yrs ago and have never used it. I have taken my seasoning biz off the shelf a few times already. Somebody is working on the graphics. Although they are different than what I had in mind...it might just turnout way better!

This is my last post till the end of March........Stay Healthy & Stay Positive!!

Don't Feel Like The Lone Ranger...

A series of things that has occurred over the last 3 weeks or so is leading me to take a sabbatical from the internet with the exception of banking and my diary entries for the Stepping Forward research project. I have some health issues I want to address. I'm going to use that time I would normally be on the net to exercise. It will help with those health issues that are concerning me. I have been working overtime, on home improvements inside & outside repair/cleaning projects(the in & out temp changes are hard on my lungs right now). I'm also not going to plan any bike treks or try to get on the fair commission.

I spoke to my health POA's Mother this last weekend and she said Karen is very concerned that I am over working myself. I know if I don't address the health matters Karen will catch a flight and I will address those health matters! She knows how to hold my feet to the fire. She has known me for close to 23 yrs now and she remembers when I tried to go to work w/ a 102 temp. At the time I was living in her house and she cut me off at the pass. She is a wonderful person whom you will meet if you go to the national Alpha1 convention in Orlando this June. Her family and I joke about me being "the third cub". Plan A is much preferable to plan B!!

If you are reading this blog for the first time, are newly diagnosed & need someone to communicate with....go to http://www.spiderspun.net/. That is Noreen James website and she loves to help other alphas. I don't intend to check my email for a while & I'm planning to shelf my seasoning business till the end of March at least.

A Capstone For Katie!

I need to contact a local printer for label pricing for a biz I've wanted to start for awhile. I think I'm going to see if I can have an invitation dated for a little over 15 yrs from now.....A "Burn The Mortgage Party"!! My mortgage is a 30 yr mortgage.

Challenges, Changes & Dead Dreams(or not so dead dreams)!

My income dropped $3000 this yr. It now stands at a gross wage of aproximately $25,000. My combined medical and medicine bills for the year are around $3,800. Now THAT'S challenging!! I guess God is just making me grow and stretch a little to make me better able to handle future challenges in life that lie ahead!

I have to make the needed improvements before the future mortgage company will consider refinancing. Some folks don't understand why...I understand quite well. There have been many homeowners that used their HE loans to survive rather than to do the home repairs/ improvements they said they would. There have been many home repo's and the lender is just protecting theirselves. I have even resorted to carpooling w/ a smoker to save a couple bucks(more like $20/wk). I am hoping the other person I heard of in SDL is open to carpooling & is a non-smoker. Unfortunately we do not live in a perfect world BUT, there is certainly much to hope for us & miracles happen every day. I know I have experienced a few in my lifetime!!

It has definitely become hand to mouth but, as I am reading Joel Osteens new book...the direct result is I continue to remind myself what efforts I went to in college so I could get my associates degree from EOSC in Wilburton. Bumming a ride once a month to grocery shop in McAllester, getting up at 3am after college dances to go collect beer cans & taking insurance off my truck so I was all paid up for the fall semester(which was the requirement for enrolling for spring semester classes.

I just have to figureout what to use as a "capstone" to keep my dreams alive. There is a story in the bible of a man named Zerubbabel who God instructed to build a temple & he came up against so much resistance from the people he quit. Then something like 10 or 20 yrs went by Zechariah came to deliver him a message from God that he was to go back to work on the temple. So to keep himself motivated he set out the capstone of the building.

My primary health POA's nephew & his wife were unable to have children the natural way. It was devastating to them but, one night he chose to go to Wal-Mart and buy baby things and place them in a basket(that was his capstone). I believe it was something like a little over a year and a half later they were able to adopt their first child. The agency told them it would take several years. Do you have a dead dream? What is your dead dream? What will you use for your "capstone"?

Thankful & Busy

Thankful I got the option to volunteer to work in another dept today instead of not work. Thankful I got shifted to pre-paint instead of double hung. At where I work they encourage you to take home disposable safety equipment. I got access to a painting P-95 mask. I have been painting upstairs & have more to do. I had to slow down because of the fumes. The mask will help. It's funny....I didn't think the main bedroom was dingy colored till I was repainting it with the closest match I could find. I am using Color Place Crystal Blue. In contrast to the old color it is very bright & vibrant! I got to thinking while I was painting...when I get the dark blue berber carpet in I might just have to make that my bedroom instead of the smaller one I chose. The one I sleep in now is a beige ceiling & a kinda muddy brown colored walled. Who wouldn't want to wake up in a bright room!?

During the holidays I am going to move some studs around a closet & another space to make things more uniform. Yup, I've done this before. Did it w/ my Dad 32 yrs ago. Makes everything more pleasing to the eye. Gonna try and get some closets trimmed up as well. Looking forward to all the home improvements!!!

HAVE A HAPPY & SAFE THANKSGIVING!!

Prescription Assistance

These are a few links:

http://www.pparx.org/ (888-477-2669)

http://www.rxassist.org/

http://www.raredisease.org/

Also, look at websites of companies who's drugs you are prescribed. They often offer financial assistance.

In another post I will list some medical bill financial assistance links...I haven't looked at them in a while so I don't remember which covers what. I was given them for when I was overwelmed w/ breast cancer medical bills. They cover more than that and sometimes we all have more than alpha1 bills to cope with!

If Wishes Were Fishes...

I'd have one helluva fry! My refi is being pushed out till December because the contractor I was dealling with became too aggravating. I need to do certain things to my house due to the fact it will be a freddie mac or fanny mae loan. I can do most of it and compared to where the contractor would have bought supplies & the cost for his labor....I figure I'll save aproximately $700. I know some of you are experiencing major financial hardship right now. The next rainy day I will post several financial assistance links(I believe it's Thursday it's supposed to rain).

Oh! Hurray for my sister Johanna. Despite the fact she is on oxygen 24-7 she just shot her first deer last Thursday w/ a cross bow. AND it was an 8 point buck!!

Alpha1 Awareness Month

Has recently been changed from May as it has been for many years....to the month of November as of this year.

Although, I think it is a poor choice especially when this is a colder month for fund raising events & publicity events for those of us in the northern states in the USA. I did cook up something that even if you are on oxygen you can do to help raise awareness about alpha1. Talk to your local library director or head librarian about their doing a showcase about alpha1/COPD just as they do during breast cancer awareness month. It is so easy! A healthy mind Healthy Body cd(make sure they limit viewing to in the library so others will always have the opportunity to veiw it. Then there is that Neil Schnactner(or is it Schnacter) book and we always have our various newsletters we get from alpha1 drug companies, other company's(accreddo, coram, centric) and alpha1 organizations as well.

I Am So Ready For The Refi Thing To Be Over!!

Got the grapes done....sister Mary you need to help me use up my grapes next yr! There were too many that went to waste. Got apples I think I'm just gonna turn into apple butter. Back on 8's @ work but, at home still BUSY, BUSY, BUSY!!!

Don't You Think It's About Time....

You posted another page on your blog?

Ok, Roger...Here ya go!

I'm busy working 9 hr days. I still have apples to turn into something. I have grapes that need to be turned into juice or jelly. I'm in the midst of trying to refi my home. I have just started another batch of wine. This time it's Wild Black Cherry and I tasted it as I transfered it and it taste dry. The lady at the wine shop said I could add conditioner when it's done doing it's thing in 2 - 3 months. It may taste better. I'm actually thinking of keeping half dry & half sweet. My next country wine will either be pumpkin or wild black berry.

Shoulda, Coulda, Woulda & What If?

I told myself over 20 yrs ago I would never say those things to myself if I could possibly help it. We can all help it. Last week I realised I really dislike my job. What is a hourly laborer doing reading business books and civic mind not trying to prepare theirselves for a more rewarding job??? Well if it's meant to be...It's up to me!! I may be hamstrung by our economy but, that is it.

I've begun the refiance process for my farm and am looking to get some business classes under my belt starting next fall(always better to start in the fall than spring due to class staggering). I'm trying to get in touch w/ the county developement/tourism director to see about setting up a metric century bike trek. He's a busy guy!! I stopped by the courthouse today & a lady promised me she would pester him till he returned my call! He wears a lot of hats(including undertaking some of the county airport manager duties).

I'm very busy and things are still steady at work. I am continually glad I never applied @ the competing window plant for a job. Their employees have made so many concessions and still no stability in orders/hours.

I've Been Tired & Swamped!

I am winding down from putting up the harvest sort of. I still have plenty pumpkins, grapes & apples to can. I have 3 grocery bags of summer squash to fry up w/ mushrooms, onions, tomatoes & Penzey's Fox Point seasoning to vac seal to throw in my poor stuffed chest freezer. We started the Stepping Forward research project a couple weeks ago. It will last 5 yrs I am told.

As putting is winding down pumpkin sales is winding up. I'm also in the midst of the process of refinancing my hobby farm. I finally discovered the back 10 acres of my farm last week. I found I have aproximately 3 - 4 more acres of field to utilize & I have 4 wild elderberry plants. Don't know what became of my wild plums...hopefully next yr will be a better yr. Also began taking a stab at home winemaking this week. Inspite of having a book and DVD on winemaking I still made mistakes(thankfully they weren't major and were correctable)!!

Sabatical/Silence Morphed....

.....into there are not enough hours in the day(daylight) before the snow flies!! I was busy this last weekend selling sweet corn & managed to start getting caught up on my Inc. Magazine reading while waiting in between sales. LOL I still got another 1.5 issues to go though!! I also have been busy with insurance stuff...Not health....car/home and have a new insurance agent in a week. Still looking for part-time work. Planning to attempt to pass Medic First aid for adults as well as pediatric Medic First Aid in the next couple of months. It's been 13 yrs since I took First Aid/CPR and have wanted to take it again for a while. I could never get in a class because they were either offered nights or didn't have enough participants for a Saturday class. Even if I don't pass the CPR I will still be better able to help someone than if I didn't!

I start participating in the Stepping Forward research project very soon. I'm really excited to be involved in Alpha1 research! Only through research will more answers be found. This a 5 yr study Dr. "Sandy" is conducting. There are 500 people participating.

Thought of the day:

Just A Little Hope Can Move Mountains & Make Miracles Happen!

I Up & Decided...

I am going to take an extended sabbatical from Facebook, Blogspot and texting. I am perfectly healthy. I just decided this at work today. I went all day w/o my phone because I forgot it at home & didn't have time to drive back to get it. I have plenty of other things to do besides play on the net @ the library! Winter is coming!!

I don't know how long it will last could be 3 months, 6 months...who knows.

Still Cancer Free....Hurray!!

I went to my 25th high school reunion Saturday night in J-ville. It got a little hot there and a couple of folks came near me with strong perfume or colgne(sp?) and my lungs tightened up. I left three hours into it. I had to use my rescue inhaler and as soon as my lungs start to open up...I was ready for a nap! It's funny how unsuspecting we are of how a simple thing like wearing perfume can effect another individuals breathing. It could be soap or hair spray, too. In my case it was perfume which as crazy as this sounds....I think of wearing perfume as a way of personal expression(at least till I realized it effected my lungs). It still think of it like a form of personal expression but, I think I can live with out it now.

I was so tired from the trek, reunion, late getting home Sunday & getting up @ 4am Monday I neglected to post about it. I had noticed a lump.....(and those of you who have been reading this blog since 2007 KNOW 7/19/2007 I had cancer surgery & got a "get out of jail free card" @ Mayo)....a few weeks ago and became very concerned about it last week. I called Mayo at 9am last Thursday to schedule an appt and they scheduled me for 8:15 am on Monday. The first dr said she was 95% sure it was a cyst but, they wouldn't know till they did the Mammogram & ultra sound. I had four cysts total and had one aspirated.

I also just read my last post and discovered...Katie, can't spell either in addition to being untrustworthy in bicycle shops & bookstores.

The Weekend Was Survived!

I only made it 15.6 miles on the Dairyland Dare. I began to experience a headache off and on. Then it became a persistent headache. Enlight on my neice & nephews losing an uncle on their fathers side to heat stroke suffered on a roofing job earlier this summer I decided there was more honor in sagging! I didn't have to peel myself off the lawn @ Harris Park. I did hydrate enough but, am wondering if I have to over fuel myself due to alpha1 an having just a little over half the use of my lungs??? They say when you have alpha1 as your disease progresses your body needs more energy to do the things you do. In essence more energy than people with healthy lungs. I've heard when we bicycle for extended periods of time we burn at least 1200 calories an hour. We need to drink at least 24 oz of water and hour on extended rides as well. If your thirsty it's already too late because you are already dehydrated!

Dairyland Dare 2009

I will be participating...how much I complete well...time will tell. Underprepared but, my oldest sister wanted me to participate in the worst way. Then onto Bail's Watering Hole. Don't know how long it will take me to peel myself off the lawn after participating in the Dairyland Dare. Got good easy fuel and will be getting a good nights sleep unlike last year.

Can't Be Trusted In Bookstores Either!!

When I had gone to bike shop a couple weekends ago I decided since I was so close to Eau Claire I head to Olive Garden for a late lunch. Then I decided well I'll stop at Borders bookstore and look at the sailing magazines. Well...I didn't get any sailing magazines...I instead got a copy of "Success" magazine and Joel Osteen's "Good, Better, Blessed" cd set. As for the bike shop technically I stayed under $50 sort of. I bought $28 worth of stuff BUT, I ordered $83 of other stuff I picked up last weekend. I don't care for EFX electrolyte powder or whatever it was called. It was lemon-lime flavored but, oh well. I really like the Hammer: gel(unflavored), gelbot & perpetuem(unflavored). The unflavored doesn't make a person want to gag! I highly doubt I will be healthy enough to participate in the Dairyland Dare but, I'm going to do my best to at least attend the event!